PRINTO past project details

The quality of life project

Thanks to a first grant from the European Union (Contract no. BMH4 983531 CA 1998/2001) PRINTO was able to cross culturally adapt and validate 2 childhood questionnaires for the health related quality of life evaluation: the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). A total of 6,644 subjects were enrolled from 32 countries: 3,235 patients had JIA, while 3,409 were healthy children. The results of the project have been published in 2001 a supplement on Clinical and Experimental Rheumatology. The database generated from the above project constitutes an important tool to be accessed by all paediatricians who aim to look more deeply at the data gathered.


Related articles

Pouchot J, Ecosse E, Coste J, Guillemin F; French Quality of Life Study Group; Paediatric Rheumatology International Trials Organisation
Validity of the childhood health assessment questionnaire is independent of age in juvenile idiopathic arthritis.
Arthritis Rheum 2004 Aug 15;51(4):519-26.
Year: 2004 -GO TO RELATED PUBMED ARTICLE -
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Ruperto N, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO).
Quality of life in juvenile idiopathic arthritis patients compared to healthy children.
Clin Exp Rheumatol. 2001; 19 (suppl. 23):S1-S172
Year: 2001 -
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Ruperto N, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO):
Quality of life in juvenile idiopathic arthritis patients compared to healthy children -Preface.
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): i
Year: 2001 -
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Ruperto N, Martini A, Landgraf JM, Singh G:
How to obtain further information about the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): ii
Year: 2001 -
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Ruperto N, Ravelli A, Pistorio A, Malattia C, Cavuto S, Gado-West L, Tortorelli A, Landgraf JM, Singh G, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO):
Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology.
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S1-9
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Moroldo MB, Ruperto N, Espada G, Russo R, Liberatore D, Cuttica R, Giacomone D, Garay S, De Inocencio J, De Cunto C for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Argentinian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S10-14
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Huemer C, Ruperto N, Huemer M, Sailer-Hoeck M, Kaulfersch W, Schwarz R, Rettenbacher A, Kenzian H, Artacker G, Pilz I, Bernecker M, Huppertz HI, Landgraf JM for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Austrian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S15-19
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Joos R, Ruperto N, Wouters C, Boven K, Raat H, Landgraf JM, Veys EM for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Belgian-Flemish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S20-24.
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Machado CSM, Ruperto N, Silva CHM, Ferriani VPL, Roscoe I, Campos LMA, Oliveira SKF, Kiss MHB, Bica BERG, Sztajnbok F, Melo-Gomes JA for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Brazilian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S25-29.
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Mihaylova D, Ruperto N, Kibarova V, Teltcharova-Mihaylovska A, Kalaikov D, Stefanov St, Lisichki K, Bojidarova M for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Bulgarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S30-34.
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Miranda M, Ruperto N, Toso MS, Lira LW, Gonzalez B, Norambuena X, Quezada A, De Inocencio J, Mendez C for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Chilean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S35-39.
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Harjacek M, Ruperto N, Ostojic J, Bukovac LT for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Croatian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S40-44.
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Dolezalova P, Ruperto N, Nemcova D, Blichova M, Hoza J for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Czech version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S45-49.
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Nielsen S, Ruperto N, Herlin T, Pedersen FK for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Danish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S50-54.
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Pelkonen P, Ruperto N, Honkanen V, Hannula S, Savolainen A, Lahdenne P for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Finnish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S55-59.
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Pouchot J, Ruperto N, Lemelle I, Sommelet D, Grouteau E, David L, Duquesne A, Job Deslandre C, Kone Paut I, Pillet P, Goumy L, Barbier C, Guyot MH, Mazingue F, Gandon Laloum S, Fischbach M, Quartier P, Guyot C, Jean S, Le Gall E, Plouvier E, Bost M, de Lumley L, LePlege A, Larbre JP, Guillemin F, Coste J, Landgraf JM, Prieur AM for the Paediatric Rheumatology International Trials Organisation (PRINTO) and for The French Study Group for Quality of Life in Rheumatology:
The French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S60-65.
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Pagava K, Ruperto N, Shalamberidze L, Mshvidobadze N for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Georgian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S66-70.
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Foeldvari I, Ruperto N, Dressler F, Häfner R, Küster RM, Michels H, Minden K, Schauer-Petrowskaja C, Bullinger M, Landgraf JM, Huppertz HI for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The German version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S71-75.
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Pratsidou-Gertsi P, Vougiouka O, Tsitsami E, Ruperto N, Siamopoulou-Mavridou A, Dracou C, Daskas N, Trachana M, Alaleou V, Kanakoudi-Tsakalidou F for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Greek version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S76-80.
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Hashkes P, Uziel Y, Press J, Brik R, Navon-Elkan P, Mukamel M, Libman E, Tauber T, Ruperto N, Barash J for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Hebrew version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S86-90.
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Orban I, Ruperto N, Balogh Z for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Hungarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S81-85.
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Ruperto N, Ravelli A, Pistorio A, Malattia C, Viola S, Cavuto S, Alessio M, Alpigiani MG, Buoncompagni A, Corona F, Cortis E, Falcini F, Gerloni V, Lepore L, Sardella ML, Strano CG, Zulian F, Gado-West L, Tortorelli A, Fantini F, Martini A. for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Italian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S91-95.
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Bae SC, Ruperto N, Lee JH, Uhm WS, Park YW, Kim SY for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Korean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S96-100.
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Rumba I, Ruperto N, Bikis E, Remberga S, Saulite I, Plotkina N, Viksna A, Krauca M, Breca I, Knauere V, Vikmanis U for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Latvian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S101-105.
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Duarte C, Ruperto N, Goycochea MV, Maldonado R, Beristain R, De Inocencio J, Burgos-Vargas R for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Mexican version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S106-110.
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Wulffraat N, van der Net JJ, Ruperto N, Kamphuis S, Prakken BJ, Ten Cate R, Van Soesbergen RM, Van Rossum MA, Raat H, Landgraf JM, Kuis W for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Dutch version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S111-115.
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Selvaag AM, Ruperto N, Asplin L, Rygg M, Landgraf JM, Forre Ø, Flato B for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Norwegian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S116-120
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Romicka AM, Ruperto N, Gutowska-Grzegorczyk G, Musiej-Nowakowska E, Wyszynska E for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Polish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S121-125.
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Melo-Gomes JA, Ruperto N, Canhao H, Fonseca JE, Quintal A, Salgado M, Santos MJ for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Portuguese version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S126-130
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Nikishina I, Ruperto N, Kuzmina N, Shelepina T, Illarionova O, Salougina S, Kaleda M, Borodacheva O for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Russian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S131-135
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Vesely R, Ruperto N, Vargova V, Lescisinova M, Mozolova D, Koskova E, Macejkova E, Hyrdelova E, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Slovak version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S136-140
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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De Inocencio J, García-Consuegra J, Merino R, Calvo I, García JJ, Ruperto N for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The European Spanish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S141-145
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Andersson Gäre B, Ruperto N, Berg S, Hagelberg S, Jonsson NO, Magnusson B, Martinell J, Erling A, Landgraf JM for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Swedish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S146-150
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Hofer M, Ruperto N, Saurenmann R, Sauvain MJ, Huppertz HI, Landgraf JM, Prieur AM for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Swiss German and Swiss French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S151-157
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Ozdogan H, Ruperto N, Kasapçopur O, Bakkaloglu A, Arisoy N, Ozen S, Ugurlu Ü, Unsal E, Melikoglu M for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S158-162
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Nugent J, Ruperto N, Grainger J, Machado C, Sawhney S, Baildam E, Davidson J, Foster H, Hall A, Hollingworth P, Sills J, Venning H, Walsh JE, Landgraf JM, Roland M, Woo P, Murray KJ for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S163-167
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Susic G, Ruperto N, Stojanovic R, Gacic D, Pilipovic N, Pasic S, Jovanovic M, Mimic A, Vukojevic P, Limic B, Djordjevic S, Milenkovic M, Plecas D, Milencovic P, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO):
The Serbian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S168-172
Year: 2001 -GO TO RELATED PUBMED ARTICLE -
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Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, Saad-Magalhães C, Murray KJ, Bae SC, Joos R, Foeldvari I, Duarte-Salazar C, Wulffraat N, Lahdenne P, Dolezalova P, de Inocencio J, Kanakoudi-Tsakalidou F, Hofer M, Nikishina I, Ozdogan H, Hashkes PJ, Landgraf JM, Martini A, Ruperto N, for the Pediatric Rheumatology International Trials Organisation (PRINTO).
Proxy-reported health related quality of life of patients with juvenile idiopathic arthritis. Arthritis and Rheumatism
Arthritis Rheum 2007;57:35-43
Year: 2007 -GO TO RELATED PUBMED ARTICLE -
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Bazso A, Consolaro A, Ruperto N, Pistorio A, Viola S, Magni-Manzoni S, Malattia C, Buoncompagni A, Loy A, Martini A, Ravelli A, for the Pediatric Rheumatology International Trials Organisation (PRINTO).
Development and testing of reduced joint counts in juvenile idiopathic arthritis.
J Rheumatol 2009;36:183-190
Year: 2009 -GO TO RELATED PUBMED ARTICLE -
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Saad-Magalhães C, Pistorio A, Ravelli A, Filocamo G, Viola S, Brik R, Mihaylova D, ten Cate R, Andersson-Gare B, Ferriani V, Minden K, Hashkes PJ, Rygg M, Sauvain MJ, Venning H, Martini A, Ruperto N for the Pediatric Rheumatology International Trials Organisation (PRINTO).
Does removal of aids/devices and help make a difference in the Childhood Health Assessment Questionnaire Disability Index?
Ann Rheum Dis 2010, 69(1):82-87
Year: 2010 -GO TO RELATED PUBMED ARTICLE -
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