PRINTO past project details

PRES/PRINTO/EULAR vasculitides registry

The PRES / PRINTO / EULAR vasculitides registry is designed to validate the EULAR/PRES Endorsed Consensus Criteria for the classification of the following childhood vasculitides:

1. Henoch Schonlein purpura (HSP),
2. Childhood Polyarteritis Nodosa (PAN),
3. Wegener Granulomatosis (WG)
4. Takayasu Arteritis (TA),
5. Unclassified Primary Systemic Vasculitis (UPSV).

These criteria have been developed by international collaboration. Now they need to be validated with a multinational registry.
Participating centres will be required to complete, retrospectively or prospectively, the information on the related internet case report forms for their patients diagnosed with one of the aforementioned vasculitides.
Enrollment period will continue for 1 year after the registration of the first patient.
Centres willing to participate, will receive a reimbursement of 35 € per patient enrolled in the study. Consent form and/or ethic committee approval will be necessary if required by the national legislation of each participating country.
If you are interested to participate you can contact the PRINTO office. The complete set of information (material for ethics committee submission, protocols, consent forms, and internet case report forms) are available, for PRINTO members only, in the reserved Member area on the left.


Related articles

Ruperto N, Ozen S, Pistorio A, Dolezalova P, Brogan P, Cabral DA, Cuttica R, Khubchandani R, Lovell DJ, O'Neil KM, Quartier P, Ravelli A, Iusan SM, Filocamo G, Saad Magalhães C, Unsal E, Oliveira S, Bracaglia C, Bagga A, Stanevicha V, Magni Manzoni S, Pratsidou P, Lepore L, Espada G, Koné-Paut I, Zulian F, Barone P, Bircan Z, del Rocio Maldonado M, Russo R, Vilca I, Tullus K, Cimaz R, Horneff G, Anton J, Garay S, Nielsen S, Barbano G, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO).
EULAR/PRINTO/PRES criteria for Henoch-Schönlein purpura, childhood polyarteritis nodosa, childhood Wegener granulomatosis, and childhood Takayasu arteritis: Ankara 2008. Part I: overall methodology and clinical characterisation.
Ann Rheum Dis 2010;69:790-797
Year: 2010 -GO TO RELATED PUBMED ARTICLE -
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Ozen S, Pistorio A, Iusan SM, Bakkaloglu A, Herlin T, Brik R, Buoncompagni A, Lazar C, Bilge I, Uziel Y, Rigante D, Cantarini L, Hilario MO, Silva CA, Alegria MA, Norambuena X, Belot A, Berkun Y, Ibanez Estrella A, Olivieri AN, Alpigiani MG, Rumba I, Sztajnbok F, Tambic-Bukovac L, Breda L, Al-Mayouf S, Mihaylova D, Chasnyk V, Sengler C, Klein-Gitelman M, Djeddi D, Nuno L, Pruunsild C, Brunner J, Kondi A, Pagava K, Pederzoli S, Martini A, Ruperto N for the Paediatric Rheumatology International Trials Organisation (PRINTO).
EULAR/PRINTO/PRES criteria for Henoch-Schönlein purpura, childhood polyarteritis nodosa, childhood Wegener granulomatosis, and childhood Takayasu arteritis: Ankara 2008. Part II: final classification criteria.
Ann Rheum Dis 2010;69:798-806.
Year: 2010 -GO TO RELATED PUBMED ARTICLE -
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Demirkaya E, Ozen S, Pistorio A, Galasso R, Ravelli A, Hasija R, Baskin E, Dressler F, Fischbach M, Garcia Consuegra J, Iagaru N, Pasic S, Scarpato S, van Rossum MAJ, Apaz MT, Barash J, Calcagno G, Gonzalez B, Hoppenreijs E, Ioseliani M, Mazur-Zielinska H, Vougiouka O, Wulffraat N, Luqmani R, Martini A, Ruperto N, Dolezalova P for the Paediatric Rheumatology International Trials Organisation (PRINTO).
Performance of the Birmingham Vasculitis Activity Score and Disease Extent Index in childhood vasculitides.
Clin Exp Rheumatol. 2012;30(Suppl. 70):S162-168
Year: 2012 -GO TO RELATED PUBMED ARTICLE -
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Ruperto N for the Paediatric Rheumatology International Trials Organisation (PRINTO).
Classification criteria and diagnostic tests for vasculitides.
J Rheumatol 2012;39;1503-1505
Year: 2012 -GO TO RELATED PUBMED ARTICLE -
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Bohm M, Gonzalez Fernandez MI, Ozen S, Pistorio A, Dolezalova P, Brogan P, Barbano G, Sengler C, Klein-Gitelman M, Quartier P, Fasth A, Herlin T, Terreri MTRA, Nielsen S, van Rossum MAJ, Avcin T, Castell ER, Foeldvari I, Foell D, Kondi A, Koné-Paut I, Kuester RM, Michels H, Wulffraat N, H Ben Amer H, Malattia C, Martini A, Ruperto N for the Paediatric Rheumatology International Trials Organisation (PRINTO)
Clinical features of childhood granulomatosis with polyangiitis (Wegener’s granulomatosis).
Pediatric Rheumatology 2014;12:18
Year: 2014 -GO TO RELATED PUBMED ARTICLE -
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