Publications

Lachmann HJ, Papa R, Minden K, Obici L, Touitou I, Cantarini L, Frenkel J, Anton J, Kone-Paut I, Cattalini M, Bader-Meunier B, Insalaco A, Hentgen V, Merino R, Modesto C, Toplak N, Berendes R, Ozen S, Cimaz R, Jansson A, Brogan P, Hawkins PN, Ruperto N, Martini A, Woo P, Gattorno M for PRINTO, the Eurotraps and the Eurofever Project.
The phenotype of TNF-receptor associated autoinflammatory syndrome (TRAPS) at presentation: a series of 158 cases from the EUROFEVER/EUROTRAPS international registry.
Ann Rheum Dis 2013; 0:1-8. doi:10.1136/annrheumdis-2013-204184.
Ozen S, Demirkaya E, Amaryan G, Koné-Paut I, Polat A, Woo P, Uziel Y, Modesto C, Finetti M, Quartier P, Papadopoulou-Alataki E, Al-Mayouf SM, Fabio G, Gallizzi R, Cantarini L, Frenkel J, Nielsen S, Hofer M, Insalaco A, Acikel C, Ozdogan H, Martini A, Ruperto N, Gattorno M; for the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Eurofever Project.
Results from a multicentre international registry of familial Mediterranean fever: impact of environment on the expression of a monogenic disease in children.
Ann Rheum Dis. 2013 Mar 5. [Epub ahead of print]
Piram M, Koné-Paut I, Lachmann HJ, Frenkel J, Ozen S, Kuemmerle-Deschner J, Stojanov S, Simon A, Finetti M, Sormani MP, Martini A, Gattorno M, Ruperto N, on the behalf of EUROFEVER, EUROTRAPS and PRINTO.
Validation of the auto-inflammatory disease activity index (AIDAI) for hereditary recurrent fever syndromes.
Ann Rheum Dis 2013; in press.
ter Haar NM, Lachmann HJ, Ozen S, Woo P, Uziel Y, Modesto C, Koné-Paut I, Cantarini L, Insalaco A, Neven B, Hofer M, Rigante D, Al-Mayouf SM, Touitou I, Gallizzi R, Papadopoulou-Alataki E, Martino S, Kuemmerle-Deschner JB, Obici L, Iagaru N, Simon A, Nielsen S, Martini A, Ruperto N, Gattorno M, Frenkel J, for PRINTO and the Eurofever/Eurotraps Projects
Treatment of autoinflammatory diseases: results from the Eurofever registry and a literature review.
Ann Rheum Dis 2013;72:678–685
Toplak N, Frenkel J, Ozen S, Lachmann HJ, Woo P, Koné-Paut I, De Benedetti F, Neven B, Hofer M, Dolezalova P, Kümmerle-Deschner J, Touitou I, Hentgen V, Simon A, Girschick H, Rose C, Wouters C, Vesely R, Arostegui J, Stojanov S, Ozgodan H, Martini A, Ruperto N, Gattorno M, for PRINTO. Eurotraps and Eurofever Projects.
An International registry on Autoinflamatory diseases: the Eurofever experience.
Ann Rheum Dis 2012;71:1177-1182.
TOzen S., Frenkel J., Ruperto N., Gattorno M. on behalf of the Eurofever Project
The Eurofever Project: towards better care for autoinflammatory diseases.
Eur J Pediatr 2011 Apr; 170(4) :445-52.
Toplak N, Dolezalovà P, Constantin T, Sedivà A, Pašić S, Cižnar P, Wolska-Kuśnierz B, Harjaček M, Stefan M, Ruperto N, Gattorno M, Avčin T; Eastern/Central European autoinflammatory collaborating group for the Paediatric Rheumatology International Trials Organization (PRINTO) and Eurofever Project.
Periodic fever syndromes in Eastern and Central European countries: results of a pediatric multinational survey.
Pediatr Rheumatol Online J. 2010 Dec 2;8:29.