Useful links


The European Society for Immunodeficiencies (ESID) has set up an internet-based patient and research database which integrates research data with more detailed clinical information. The aim of this database is to achieve long-term documentation of patients with primary immunodeficiencies (PID). There are over 200 different types of PID that can be grouped into 7 different categories, one of which are autoinflammatory diseases (AID). Therefore, there is an overlap between the EUROFEVER Registry and the ESID Database. EUROFEVER centres that are following patients with other kinds of PID are encouraged to contribute their data to the ESID Database.


EUROTRAPS is a multidisciplinary international consortium aimed to gain insights into the natural
course and pathophysiology of TNF receptor-associated periodic syndrome (TRAPS). One of the main aim of EUROTRAPS is to create an international registry for the disease. This particular task is performed in close collaboration with the Eurofever Project.


This is a national German project aimed to the analysis of different aspects (genetics, disease mechanisms, diagnostic markers, and therapeutic targets) of Autoinflammatory diseases. A national Registry is also available, in close collaboration with the Eurofever Project.


The ISSAID society gathers resources designed specifically for Autoinflammatory diseases to facilitate contacts between physicians, biologists and basic researchers dealing with these disorders. It provides support to share and rapidly disseminate information, thoughts, feelings and experiences to improve the quality of life of patients affected by Autoinflammatory diseases and promote advances in the search for the causes and cure


An updated registry of all the gene variants associated to Hereditary Autoinflammatory diseases.