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ABOUT
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RESEARCH
PROJECTS
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PRINTO
PAST PROJECT DETAILS
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Disease activity and damage core sets and definition of improvement for juvenile systemic lupus erythematosus and juvenile dermatomyositis |
Thanks to a second grant from the European Union (Contract no. QLG1-CT-2000-00514 2000-2003) we set up a project to define core sets of outcome measures for disease activity and disease damage assessment and definitions of improvement, to be used in clinical trials and outcome assessment studies in children with juvenile systemic lupus erythematosus (JSLE) and juvenile dermatomyositis (JDM). This project was developed in collaboration with the US-based “Pediatric Rheumatology Collaborative Study Group (PRCSG). The project has collected 292 patients with JDM and 554 patients with JSLE from 41 countries.The final goal of this project is to have a standardised approach for the outcome evaluation of children with JSLE and JDM enrolled in clinical trials. |
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Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, Brunner J, Dannecker G,Silva CA, Stanevicha V, Ten Cate R, Van Suijlekom-Smit LWA, Voygioyka O, Fischbach M, Foeldvari I, Hilario MO, Modesto C, Saurenmann RK, Sauvain MJ, Scheibel I, Sommelet D, Tambic-Bukovac L, Barcellona R, Brik R, Ehl S, Jovanovic M, Rovensky J, Bagnasco F, Lovell DJ, Martini A, for the Pediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG).
The Provisional Pediatric Rheumatology International Trial Organization/American College of Rheumatology Disease Activity Core Set for the evaluation of response to therapy in Juvenile Dermatomyositis: A Prospective validation study.
Arthritis Rheum. 2008; 59:4-13.
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2008 |
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Ruperto N, Bazso A, Ravelli A, Malattia C, Filocamo G, Pistorio A, Rodriguez Lozano AL, Viola S, Martini A.
Review: The Paediatric Rheumatology International Trials Organization (PRINTO).
Lupus 2007;16(8):670-6.
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2007 |
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Ruperto N, Ravelli A, Martini A, for the Pædiatric Rheumatology International Trials Organisation (PRINTO).
Evaluation of renal improvement in juvenile systemic lupus erythematosus: Comment on the articles by Ruperto et al. Reply.
Arthritis Rheum. 2006:55:991-992
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2006 |
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Ruperto N, Ravelli A, Martini A
Reply to letter by Isenberg and Gordon commenting on the Pediatric Rheumatology International Trials Organization criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus.
Arthritis Rheum. Oct 30;54(11):3723-3724
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2006 |
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Raul Gutiérrez-Suárez, Nicolino Ruperto, Roberto Gastaldi, Angela Pistorio, Enrico Felici, Ruben Burgos-Vargas, Alberto Martini, and Angelo Ravelli, for the Pediatric Rheumatology International Trials Organization (PRINTO)
A Proposal for a Pediatric Version of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index
Based on the Analysis of 1,015 Patients With Juvenile-Onset Systemic Lupus Erythematosus
Arthritis Rheum. Vol. 54, No. 9, September 2006, pp 2989–2996
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2006 |
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Ruperto N, Ravelli A, Oliveira S, Alessio M, Mihaylova D, Pasic S, Cortis E, Apaz M, Burgos-Vargas R, Kanakoudi-Tsakalidou F, Norambuena X, Corona F, Gerloni V, Hagelberg S, Aggarwal A, Dolezalova P, Magalhaes Saad C, Bae SC, Vesely R, Avcin T, Foster H, Duarte C, Herlin T, Horneff G, Lepore L, Van Rossum M, Trail L, Pistorio A, Andersson-Gäre B, Giannini EH, Martini A, for the Pædiatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG).
The Pediatric Rheumatology International Trials Organization/American College of Rheumatology provisional criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus. Prospective validation of the definition of improvement.
Arthritis Rheum. 2006; 55:355-363
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2006 |
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Ruperto N, Ravelli A, Cuttica R, Espada G, Ozen S, Porras O, Sztajnbok F, Falcini F, Kasapcopur O, Venning H, Bica B, Merino R, Coto V, Ros J, Susic G, Gamir ML, Minden K, See Y, Uziel Y, Mukamel M, Riley P, Zulian F, Olivieri AN, Cimaz R, Girschick H, Rumba I, Cavuto S, Pistorio A, Lovell DJ, Martini A, for the Pædiatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG).
The PRINTO criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus. Prospective validation of the core set.
Arthritis Rheum. 2005;52(9):2854-2864
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2005 |
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Ruperto N, Ravelli A, Murray KJ, Lovell DJ, Andersson-Gare B, Feldman BM, Garay S, Kuis W, Machado C, Pachman L, Prieur AM, Rider LG, Silverman E, Tsitsami E, Woo P, Giannini EH, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG).
Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis.
Rheumatology 2003; 42: 1452-1459
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2003 |
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proceedings |
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Detail |
An international consensus conference to define core sets of outcome measures for
Juvenile systemic lupus erythematosus and
Juvenile dermatomyositis
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2001 |
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Copyright
IRCCS Istituto G. Gaslini, Universita' di Genova
Pediatria
II, Reumatologia, EULAR Centre of Excellence in Rheumatology
2008-2013
Largo Gaslini, 5 16147 Genova, Italy
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