PRINTO PAST PROJECT

Title

Description

Details

Core set of outcome measures and definition of improvement for juvenile arthritis

PRINTO first achieved goals was to define a core set of outcome measures and a definition of improvement to be used in clinical trials in children with juvenile arthritis…

The methotrexate trial in intermediate versus higher dose in juvenile idiopathic arthritis

PRINTO set up a randomized trial to compare intermediate versus higher doses of MTX in children with JIA. The trial was built on the current "standard of care"…

The quality of life project

PRINTO was able to cross culturally adapt and validate 2 childhood questionnaires for the health related quality of life evaluation: the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ)…

Disease activity and damage core sets and definition of improvement for juvenile systemic lupus erythematosus and juvenile dermatomyositis

PRINTO set up a project to define core sets of outcome measures for disease activity and disease damage assessment and definitions of improvement, to be used in clinical trials and outcome assessment studies in children with JSLE and JDM…

A web site for families of children with paediatric rheumatic diseases (www.pediatric-rheumatology.printo.it) and health professionals

PRINTO set up a project to define to set up a web site, translated in all the language of the countries belonging to PRINTO with up-to-date consensus information on paediatric rheumatic diseases; the map of the centres…

Training in paediatric rheumatology for Latin America physicians

PRINTO set up a scientific and technical collaborative network of first level research training in Paediatric Rheumatology, to support mainly Latin America and European physicians

Liaisons with pharmaceutical companies

PRINTO is working with pharmaceutical companies as advisor for trials planning, centre selection, data collection, data analysis and interpretation…

MTX withdrawal in juvenile idiopathic arthritis

PRINTO designed the present trial to determine if the time to discontinuation of Methotrexate (6 versus 12 months) in Juvenile Idiopathic Arthritis, after the patient has reached clinical remission, influence the time to relapse…

Genomics and Pediatric Rheumatic Diseases survey

PRINTO designed the present survey to investigate if the PRINTO centres have families with paediatric rheumatic diseases where more cases of the same disease (e.g. JIA or JSLE or JDM etc) are present among brothers and/or sisters (affected sib pairs)

PRES/PRINTO/EULAR vasculitides registry

The PReS Vasculitis Working Group, in collaboration with PRINTO and with the EULAR support designed the present registry to validate the recently developed “EULAR/PreS endorsed criteria for the classification of childhood vasculitides”.