Paediatric Rheumatology International Trials Organisation (PRINTO)
Paediatric Rheaumatology European Society (PRES)

 

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Survey .doc file
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IMPORTANT: ONLY BY COMPLETING THIS SURVEY YOU WILL HAVE THE POSSIBILITY TO BE LISTED ON THE WEBSITE

 

 

 

 

 

 

 

 

 

 


Genova, May 7th, 2003

Object: work force survey for paediatric rheumatology

Dear Friend,

Thanks to the third grant obtained from the European Union (contract 2001CVG4-808), the Paediatric Rheumatology International Trial Organisation (PRINTO) in collaboration with the Paediatric Rheumatology European Association (PRES), will establish an international paediatric rheumatic disease information network directed to families. The American Academy of Pediatrics (AAP) and the Pediatric Rheumatology Collaborative Study Group (PRCSG), have joined us to implement this effort in North America.
The main objectives of this project are to prepare a website where the following information will be available for every country member translated into their own languages.

  • Updated consensus information on each of the paediatric rheumatic disease (What is it?, How to diagnose it, How to treat it…etc)
  • Map of the paediatric rheumatology centres in each of the PRINTO/PRES member countries
  • Map of the family help associations (charities or similar) in each of the PRINTO/PRES member countries.

The goals of this first survey are to collect reliable information to be included on the developing web site in order:

  • to characterise current practice patterns of physicians who provide care for children with paediatric rheumatic disease,
  • to characterize research and training facilities of each centre.


It will take about 20-25 minutes to complete the survey.


IMPORTANT: ONLY BY COMPLETING THIS SURVEY YOU WILL HAVE THE POSSIBILITY TO BE LISTED ON THE WEBSITE

Have a good day

Alberto Martini     Nicolino Ruperto


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