This site is the result of a collaboration between the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Paediatric Rheumatology European Society (PRES), realised with funding obtained from the European Union (contract number 2001CVG4-808).
PRINTO is an not for profit international public network established in 1996 by 14 European countries (now 43 countries in Europe and outside Europe), with the goal to foster, facilitate and co-ordinate the development, conduct, analysis, and reporting of studies to evaluate efficacy and safety of drug therapies, quality of life and outcome for children with paediatric rheumatic diseases. PRINTO is composed of academic and/or clinical centres actively engaged in the research and clinical care of children with paediatric rheumatic diseases.
PRES is an international scientific society for European healthcare professionals (and non-Europeans as associate members) working in the field of paediatric rheumatology. The mission of PRES is to promote knowledge of paediatric rheumatic diseases, stimulate research in the field, disseminate knowledge through scientific meetings and publications, provide guidelines and standards for good clinical practice, provide guidelines and standards for the training of doctors and allied health professionals in the practice of paediatric rheumatology. In addition, PRES facilitates co-ordination of paediatric rheumatology activities within Europe, eg. the PRINTO chairperson and the EULAR paediatric rheumatology standing committee chairperson have permanent seats in the PRES council.
The site is divided into three sections (see links below):
The first part is aimed to inform the parents on the characteristics of paediatric rheumatic diseases.
The second section gives the addresses of paediatric rheumatology centres, whose physicians are members of PRINTO and/or PRES. This list will be updated regularly and does not pretend to be exhaustive.
The third section lists the family help associations that can be found in the different countries. Their main purpose is to give advice with everyday problems and difficulties that the families have to cope with.
The information has been gathered through a questionnaire devised by PRINTO and approved by PRES, sent to paediatric rheumatology centres in 43 countries.